TO EOE, OR NOT TO EOE: THAT IS THE QUESTION
After a long week of doctor’s appointments for my son, Elijah, I finally sit to share my heart with you. So many of you have prayed and asked about him. I sincerely thank you.
Your messages, emails and phone calls are like a kiss from heaven to me during this time. If you aren’t aware of my son’s recent battle, you can read the following posts. PROVISION & PRAISE, WHEN THINGS DON’T GET BETTER, A DIAGNOSIS, and IN BATTLE
Monday afternoon we finally met with the EOE specialist to discover that the way EOE is diagnosed has changed. It is now a two-step process.
Step one is confirmed.
Step two involves another endoscopy with multiple biopsies in six weeks.
He has been on a new medication for two weeks, but must be on it for a total of eight weeks. He must have another biopsy that shows eosinophils present or absent. Then, his diagnosis can be confirmed or denied.
In short – still no answers. Still no relief.
He sent us back to his GI doctor to address his pain during the next six weeks or indefinitely if it is not EOE.
Later that afternoon we saw his pediatrician. I tried making him laugh by matching his frown. I’m happy to report it did garner a small one.
“Mom, my heart doesn’t feel right.” Elijah told me on Wednesday. He occasionally says it feels like it skips a beat but so did mine as a child.
This was different though so I made a mental note to add it to the list of things I need to discuss with the GI doctor.
Thursday morning Elijah woke and said the same thing. Less then five minutes later he was hobbling to the sofa, grabbing at his chest saying, “It hurts to breathe, it feels so heavy.” He was weak and could barely raise his arms.
It didn’t last long but I called his doctor’s office right away. In less than ten minutes we were sitting in the office.
His EKG was abnormal and cardiology was called.
The GI doctor saw him today and performed another EKG. Still abnormal.
Or so it appears. But I saw his heart today and it was beautiful.
“Ma’am, here you go. I have a card for your son. I hope he feels better soon.”
The boys and I regularly make up a bunch of get well cards for kids and every time we go to the children’s hospital, we find hurting little ones or their families and give them one. Today, as we were leaving the hospital, Elijah spotted a hurting child.
That’s my sons heart!
Tuesday June 13th he is scheduled to see a cardiologist, to be followed by an appointment with a pediatric pain management doctor.
Pediatric pain management doctor.
My heart broke at the realization that such a title exists. And yet, I’m so thankful it does.
Aren’t you thankful we also have our very own pain management physician? I’ve been frequenting his office a lot lately.
His name? Jesus.
He’s the most personal doctor I know.
His bedside manner is out of this world.
He lets me curl up in his lap.
He holds me when I need to be held.
He wipes my tears and keeps them.
And one of the best things – he is available the second you call.
Thank you for visiting him on my son’s behalf. On our families behalf. I feel your prayers fellow servants.
Scripture says to pray for others that you may be healed. As Elijah poured out toward the sick child he saw today, even in the midst of his pain, may we also pray for you?
Feel free to comment below or you may email me through the contact form. Elijah and I would like to pray for your need. We can’t wait to hear from you.Click To Tweet
Posted on: June 10, email@example.com